Hospice Care Checklist: What Patients and Families Need to Know

Understanding Hospice

I know that hospice focuses on comfort, quality of life, and dignity for terminal illnesses.

I understand hospice does not provide curative treatment or 24/7 bedside care.

I know hospice supports both patients and their families emotionally and spiritually.

 

Eligibility & Enrollment


A doctor has certified a prognosis of six months or less if the illness follows its usual course.

I know hospice can be started, stopped, or restarted if needed.

I have checked what hospice services my insurance (Medicare, Medicaid, or private insurance) covers.

 

Choosing a Hospice Provider –


I have asked my doctor, social worker, or trusted friends for hospice recommendations.

I have checked online reviews or contacted my states hospice organization for information.

I have spoken directly with the hospice team about what services they offer and where care is provided (home, hospice center, nursing home, hospital).

 

What to Expect from Hospice –


I have asked about pain and symptom management plans.

I know who my hospice team members are and how to reach them.

I understand how hospice will support my family, including emotional and spiritual care.

Ive asked for education on what to expect as my loved one approaches the end of life.

 

Planning Ahead –
I have completed or discussed advance directives or living wills.

I have shared my or my loved ones wishes with family and caregivers.

I know where to find grief support or bereavement resources for after a loved one passes.

 

Helpful Resources

National Institute on Aging: www.nia.nih.gov

Hospice Foundation: www.hospicefoundation.org

American Cancer Society: www.cancer.org

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