Hospice Care Checklist: What Patients and Families Need to Know
Understanding Hospice –
☐ I know that hospice focuses on comfort, quality of life, and dignity for terminal illnesses.
☐ I understand hospice does not provide curative treatment or 24/7 bedside care.
☐ I know hospice supports both patients and their families emotionally and spiritually.
Eligibility & Enrollment
☐ A doctor has certified a prognosis of six months or less if the illness follows its usual course.
☐ I know hospice can be started, stopped, or restarted if needed.
☐ I have checked what hospice services my insurance (Medicare, Medicaid, or private insurance) covers.
Choosing a Hospice Provider –
☐ I have asked my doctor, social worker, or trusted friends for hospice recommendations.
☐ I have checked online reviews or contacted my state’s hospice organization for information.
☐ I have spoken directly with the hospice team about what services they offer and where care is provided (home, hospice center, nursing home, hospital).
What to Expect from Hospice –
☐ I have asked about pain and symptom management plans.
☐ I know who my hospice team members are and how to reach them.
☐ I understand how hospice will support my family, including emotional and spiritual care.
☐ I’ve asked for education on what to expect as my loved one approaches the end of life.
Planning Ahead –
☐ I have completed or discussed advance directives or living wills.
☐ I have shared my or my loved one’s wishes with family and caregivers.
☐ I know where to find grief support or bereavement resources for after a loved one passes.
Helpful Resources
National Institute on Aging: www.nia.nih.gov
Hospice Foundation: www.hospicefoundation.org
American Cancer Society: www.cancer.org