Recognizing the Dying Journey Checklist
Understanding What Is Happening When Medicine Can’t Fix It
1. Notice the Subtle Changes
Have I observed:
• Decreased appetite or interest in food
• Increased sleeping or longer periods of rest
• Less energy or difficulty engaging in conversation
• Reduced mobility or strength
• “Are these changes part of a natural decline rather than something to fix?”
2. Understand the Pattern of Decline
Have I noticed:• Recovery from illness or hospitalization is slower each time
• Treatments are helping less or causing more strain
• More frequent hospital visits or complications
Suggested reflection:
• “Are we seeing a gradual narrowing rather than a sudden change?”
3. Recognize When Treatment Is Shifting
Do I understand:
• If curative treatments are still effective or no longer working
• When the care team begins discussing comfort-focused care
Have I asked:
• “Are we still trying to cure this, or are we focusing on comfort now?”
4. Acknowledge the Emotional Response
Have I experienced:
• Shock, even though I knew this was coming
• A feeling of “this happened suddenly”
• The urge to ask, “What else can we do?”
Reminder:
• These reactions are normal and rooted in love, not lack of understanding
5. Know What the Body May Be Doing
Do I recognize:
• The body may be gradually slowing down• Eating and drinking less is often part of the process
• Increased sleep is natural, not harmful
Have I asked:
• “Is this a normal part of the dying process?”
6. Shift the Focus of Care
Have I considered:
• Moving from cure to comfort
• Prioritizing pain control and peace
• Supporting dignity and emotional presence
Suggested question:
• “What can we do to make this more comfortable and peaceful?”
7. Stay Connected to the Care Team
Do I know:
• Who to call with questions (nurse, hospice, physician)
• What changes to report
• What to expect in the coming days
Have I asked:
• “What should we expect next?”
8. Allow Space for Presence
Have I given myself permission to:
• Sit quietly without needing to fix anything• Hold a hand, speak gently, or simply be there
• Focus on connection rather than intervention
Reflection:
• “Being here may be the most important thing I can do.”
Understanding the dying journey doesn’t remove the pain of loss—but it can soften the
shock and help you move from panic to presence