Speak Up Checklist: A Self-Advocacy Guide for Hospital Patients

How to Ask for What You Need—Calmly, Clearly, and Confidently

Your voice is part of your care plan.”

Step-by-Step Self-Advocacy Guide

 

1.  Trust Your Gut

  • Do I feel like something is being missed or delayed in my care?
  • Am I uncomfortable, in pain, or confused—and unsure who to tell?
  • Have I been waiting for something that hasnt happened (like a consult, test, or discharge update)?

If yes: Its okay to speak up. You are not complaining—youre communicating.

 

2.  Use Clear, Curious Language

Try saying:

  • Can you help me understand why ____ hasnt happened yet?”
  • Im still in pain—has there been a change in my medication plan?”
  • Is the therapy/specialist I was told about still part of the plan?”

This avoids sounding confrontational while still being assertive.

 

3.  Know Who to Talk To

Heres a quick whos who:

  • Nurse – Day-to-day updates, meds, care coordination
  • Doctor (Hospitalist/Attending) – Care plan decisions, test orders, consults
  • Social Worker or Case Manager – Discharge, insurance, equipment, placement
  • Patient Advocate – Unresolved concerns, communication breakdowns
  • Therapists (PT/OT/ST) – Mobility, recovery, rehab
  • Chaplain or Spiritual Care – Emotional, spiritual, or grief support

Im not sure who handles this—can you point me in the right direction?”

 

4. Track Your Conversations

  • Write down names, roles, and times you spoke to someone
  • Note any promises or explanations given
  • Follow up after a reasonable amount of time

Having a record helps keep things from slipping through the cracks.

 

5.  Know Your Rights—And Ask for Help

You can request:

  • A Patient Advocate to help you resolve concerns
  • An Interpreter (legally required if you need one)
  • A Medication Review if you’re unsure about what youre taking
  • A Specialist Consult (e.g., pain, neurology, psychiatry)
  • Mobility Aids or therapy to help with recovery

 

Id like to speak with a patient advocate about a concern I have.”

 

Bonus: 5 Empowering Phrases to Use Anytime

  • Can you help me understand ___?”
  • Im not sure who handles this—can you direct me?”
  • Id like to request a patient advocate.”
  • I dont feel heard—can we revisit this plan?”
  • Is there a policy u can explain to me”

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The Patient Power Starter Kit

This Starter Kit brings together four powerful reflections from my blog-each one paired with a practical checklist or prompt to help you stay grounded, informed, and empowered as a patient or caregiver.

Whether you read one page or all of them, you’ll find real tools, honest perspective, and a steady voice to walk beside you.

07 - Patient Power

How to reclaim your voice, your calm, and your confidence-even in a hospital gown.

02- Listen to Your Body

Your body knows. Here’s how to start listening-and what to do with what it says.

03 - Just Not Knowing

When there are no clear answers, this page helps you find steadiness in the unknown.

04 - Power as a Nurse

A look from my side of the bedside-what I’ve seen, and what every patient should know.

Art Of Being Ill
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